Navigating Special Education for a Successful School Year
In preparation of the upcoming school year, we dive into a crucial topic for parents and caregivers – preparing for the new school year within the realm of special education. A brain tumor diagnosis...
View ArticleRaymond A. Wood Foundation Reveals Caregiver Burden in Pioneering...
The Raymond A. Wood Foundation recently published its first research study entitled “Caregiver burden and its relationship to health-related quality of life in craniopharyngioma survivors” in the...
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Innovating in Diabetes Insipidus Management: A Breakthrough in Blood Sodium...
Introduction Managing diabetes insipidus just got a significant boost, thanks to the groundbreaking work of the Raymond A. Wood Foundation in collaboration with Giner, Inc. and the Children’s Hospital...
View ArticleClinical Trial Participant Best Practices
As a Participant, it’s Important to Do Your Part to Maintain the Integrity of the Study Participating in a clinical trial is a personal decision, and there are certainly best practices to consider,...
View ArticleEmpowering Families: Nathan’s Journey with Craniopharyngioma and Diabetes...
Meet Nathan Johnson: A Brave Warrior, Age 5, Fighting Against Craniopharyngioma In May of 2021, young Nathan faced a diagnosis that would change the course of his childhood. At just three years old,...
View ArticleIlluminating Insights: Sharing a Recent Commentary on Our Research
The Raymond A. Wood Foundation is honored to share a significant development in our journey to better understand childhood-onset craniopharyngiomas and caregiver impact. Recently, a commentary was...
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Recap: Pituitary Brain Tumor Family Conference 2023 – Advocacy, Connection,...
Overview In the heart of Philadelphia, the Raymond A. Wood Foundation hosted the 5th Annual Pituitary Brain Tumor Family Conference 2023 at the Children’s Hospital of Philadelphia, embodying a shared...
View ArticleNavigating the Holidays as a Caregiver: Maintaining Structure and Wellness
Supporting Your Brain Tumor Survivor and Yourself During the Holidays The holiday season brings warmth, love, and joy, but for caregivers of brain tumor survivors, it can also bring unique challenges....
View Article2023 with RAWF: A Year in Review
2023 has been a remarkable year for the Raymond A. Wood Foundation, one filled with progress, impact, and meaningful milestones. As we look back on the past year, we’re excited to share the highlights...
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Dan’s ‘Breakthrough’ T-Shirt Fundraiser
Why I created a t-shirt to celebrate AVP-D “culture” and support RAWF’s blood sodium meter project My name is Dan Klingessrow and I live just outside D.C. in Mount Rainier, Maryland with my son Jonah...
View ArticleWelcoming Two New Additions to Our Team!
At Raymond A. Wood Foundation, we are thrilled to announce the arrival of two exceptional individuals who bring a wealth of talent, passion, and dedication to our mission of supporting survivors of...
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Scaling New Heights: Conquering Mount Kilimanjaro with AVP-D and Thriving...
Hiking Kilimanjaro has been a dream of mine for many years and on Sunday 25th February at 7:18am this became a reality. Despite 40mph wind and a temperature of -22 degrees I reached Uhuru Peak (5,895m...
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Triumph and Togetherness: RAWF Takes on the United Airlines NYC Half Marathon
In the bustling streets of New York City, amidst the vibrant energy of the United Airlines NYC Half Marathon, a remarkable team took on the challenge, not just as runners, but as warriors with a cause...
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